|
"...the
savage reality of the mother struggling to get a shirt onto her fully-grown
son, that funny, generous lad once full of life and mischief transformed
to an unrecognisable, dull, fractious child, is bleak beyond words."
Most of the publicity regarding car accidents, particularly involving
young drivers, is focused on the number of people killed. However, below
is an excellent article published in the Irish Times last December. It
deals with the issues and problems facing survivors of car accidents,
the side of the story we never hear about.
'God
forgive me, there are things worse than dying' - Irish Times (6/Dec/2001)
Not
everyone involved in a car accident dies. In the final part of our series
, Kathy Sheridan reports on the individuals and families who spend years
in rehab "For some young men, it was not the fact that they thought
they were invincible, but simply the immediate guaranteed benefit they
got from what they referred to as the adrenaline buzz, which far outweighed
the possible cost of injury to themselves or to others."
From
a North Eastern Health Board report, Men Talking
"Once
you think about it, well after you do it, you say, 'Jesus, I shouldn't
have done that' but at the time you just hop in and floor it."
A
young farmer, quoted in the report
"Life
is now and I see nothing there for me. This is what I have."
A
brain-injured man on his vision of the future
It's
coming up to 5 p.m. on a Friday and staff on the brain injury wards at
Beaumont Hospital are clearing the decks. It's about now that the phone
calls start coming, looking for beds, and they won't stop until about
5 a.m. on Monday. Yes, it is that predictable, says Dr Rory O'Connor.
Some
40 per cent of brain injuries happen in those few days. There is a three-
or four-to-one shot that the patient being rushed in on the trolley will
be a young man aged between 16 and 25, injured in a road accident. He
will probably have been the driver and the chances are that no other car
was involved. So his injuries are probably all his own work, a result
of the usual combination of speed, inexperience, drink and/or drugs.
Wonderful
advances in acute care and neurosurgery mean that he will probably live,
though not necessarily to tell the tale. "No one ever makes a full
recovery from brain injury," says Dr O'Connor, a specialist registrar
in rehabilitation medicine. There is always some legacy, whether it's
to do with the memory, attention span, reading, headaches, fatigue . .
. This is so well recognised that there is a name for it: post-concussion
syndrome."
And
those are the lucky ones.
"The
paradox of traumatic brain injury is that survival, or even seemingly
full physical recovery (and 90 per cent of head injured people make remarkably
good progress in this regard), can merely add to the nature of the catastrophe,"
writes Dr David Webb, who has carried out research for Headway UK.
"The
triumph of the body is poor compensation for the sequestration of the
mind, where memory loss, impairment of attention, slowness in processing
information, and reduced speed of thought are all common . . ."
The
tragedy for the young man who survives a brain injury this weekend through
the skill and diligence of everyone from ambulance drivers to neurosurgeons
is that he and his family are only then beginning a "long, painful
and frightening journey", in the words of nurses at the National
Rehabilitation Hospital (NRH), Dún Laoghaire.
For
all that, the subject of TBI is almost taboo. Such is its frequency, it
has been described as "the silent epidemic of modern times"
by Prof Jack Phillips. A recent survey asked young people whether they
would prefer death or paralysis (death was the answer) but brain damage
never entered the picture. Yet they are 10 times more likely to suffer
brain damage than a spinal injury, according to British figures. In the
media obsession with fatality figures, these are the forgotten survivors.
Part
of the problem is that the classic image of the road traffic victim -
the young man in a wheelchair with spinal injury - is powerful and easy
to convey. How do you photograph the devastation that may lurk within
and around a 21-year-old with brain damage? He may seem physically normal.
But
the truth inside each small cubicle, the savage reality of the mother
struggling to get a shirt onto her fully-grown son, that funny, generous
lad once full of life and mischief transformed to an unrecognisable, dull,
fractious child, is bleak beyond words.
"We
didn't think he'd survive the first few weeks after the accident,"
said a woman whose 23-year-old son was seriously injured two years ago.
"Between the doctors and ourselves, we dragged him back from the
brink of death but when I look at him now, I think, God forgive me, there
are worse things than dying."
Nearly
50 and in indifferent health, she has reverted to being the full-time
carer of a grown son who has once again become a child. There is no respite
care worth the name for him, only a choice between "an old people's
home and a mental hospital". The emotional and physical demands have
wrecked her marriage.
The
devastating personality changes that can accompany brain injury in all
ages is like "an unrelenting bereavement" for the family, says
Sister Mary Seymour of the NRH. Marie Therese O'Sullivan, a former rehabilitation
nurse who has researched the area, found that this grief is never fully
resolved and that the mothers continued to search for the "old child"
in the "new child".
On
top of all this, the lack of social understanding and the scandalous dearth
of services once they walk out of the NRH, have isolated her as surely
as if she were a social pariah.
But
the NRH isn't populated entirely by young men. More than two-thirds of
the children under 16 are there because of traffic accidents. They are
further disadvantaged because of their "immature brain", says
Claire Conway, a senior nurse on the paediatric rehabilitation team in
the NRH, "it's almost as if they're frozen in time".
How
can that be captured in a photograph? In the meantime, despite the dedication
and advocacy of people such as the nurses and medical staff in the NRH
and organisations like Headway Ireland (the national association for acquired
brain injury), brain injury remains taboo.
There
is no national computer database, for example, to gauge the true extent
of this calamitous condition which will become more prevalent as survival
rates increase.
As
long as hard information is not available, priority will always go elsewhere.
Dr Rory O'Connor worked at the NRH before coming to Beaumont a year ago.
Many of his patients are only a few years younger than him. What are his
feelings about the scenes that confront him day after day? "Anyone
driving out of the NRH wears a seat belt and drives a bit slower than
when they came in," he replies.
The
helpline number for Headway Ireland is 1890-200-278.
|